Tuesday, October 8, 2019

CHOA cape day 2019

Children’s Healthcare of Atlanta Cape Day
“While some superheroes battle scary villains, at Children’s our superheroes fight something much scarier – illnesses and injuries that many of us could never imagine.  But when they wear a cape, nothing is impossible.  Please join us as we celebrate all of our superhero patients”


Abby has been wearing her cape annually since 2016, and this year Chloe joined in on the fun for the first time too!  The sisters have been having a great few weeks of getting along, and I was excited to see them excited about this :)  Plus, I'm sure it was great to have each other at school, since no one else ever wears one.  The old school nurse used to, but the new one doesn't.  And actually in four years of cape wearing, no teacher/ staff, not even the nurse, has ever acknowledged it or asked Abby about why she wears it.  Abby was lamenting that she's the only one that ever wears one - all the while, never saying she didn't want to, which I loved.  So it was super fun for them to wear them together.  They each have a printed sheet to take to school that highlights their story and the why behind why they wear them.  Awesome Mrs. Shakespeare, Chloe's teacher and a good family friend, read her story to her class!  


she's a superhero in my book for sure!


they were all about posing themselves which makes for a happy, picture-loving mommy :)


From Abby's print-out ::

Our Abby was born in April of 2010 with the diagnosis of a multi-cystic dysplastic kidney - basically she only has one kidney [just like her mommy!].  However, we quickly realized that her one functioning kidney wasn’t functioning like it was supposed to.  Abby was admitted to the Scottish Rite emergency room on April 28th and spent the month of May in the hospital.  Lots of tests, scans, bloodwork [including an IV in her head and a picc line], a very scary UTI, two nights in the PICU, a nephrostomy bag, a failed stint, and three surgeries later, Abby is an incredibly healthy, athletic, joyful, fun-loving girl.  To meet her now, you would most likely never know or believe all she went through to get to this point.  From birth, she has shown amazing strength and spirit and resilience. 

Our family owes her life to CHOA.  The doctors, nurses, techs, and staff there are nothing short of amazing.  While I hope no one ever has to go through what Abby did, we are so thankful for this wonderful organization and all they did for our baby girl. 

Today, Abby is perfectly healthy and in no way limited or affected by having only one kidney.  We had follow-ups regularly throughout her early years, but she was released from her urologist’s care at five years old, and only sees her nephrologist once every two years for a routine ultrasound and checkup.  


From Chloe's ::


Chloe’s first experience with Children’s came at ten weeks old.  After several outpatient visits, she was admitted to Scottish Rite with RSV.  We spent three full days and two nights there. 

Chloe has also visited the Scottish Rite E.R. two different times for two different broken bones – both times she broke both bones on her left forearm requiring sedation to reset and cast them.  We’ve also had various outpatient visits, including pneumonia when she was six.

For more on our family’s appreciation of and gratitude to CHOA, see her sister Abby :)  Abby was admitted to Scottish Rite at 15 days old, and over the course of a month and numerous surgeries, CHOA saved her life.  We are forever thankful for this wonderful organization.  What a blessing CHOA has been to our family!

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